february 11, 2020

I don’t know if you can access the true face of fear until the life of one you love is in jeopardy.  Many will freely agree that to lose a child is every parent’s worst nightmare. Sometimes, when I stop and remember my life and try to understand what happened—how my first daughter died days after turning two from a vicious and unexplainable disease and how I gave birth a month later to a second daughter with a rare genetic disorder that causes blindness and kidney failure—I feel like I’m not real, like I’m living out the script of a movie or a book and that this is all a fantasy that is really happening to someone else: someone braver or stronger.

today

I’m married to the man of my dreams, and I just gave birth to my third daughter, who is beautiful, healthy, sighted, and alive.  Each day, I live four faces of motherhood: a homeschooling mother to my stepson, a grieving mother to my daughter in heaven, an advocating mother to my daughter who is visually impaired, and an adoring mother to my newborn. 

The risk of writing publicly about your experience parenting is creating the perception of perfection or, at least, of having figured it all out.  I want to break that perception.  I am what I am first by virtue of what I have lost, and only second because of what I have gained.

St. Patrick’s Day, 2023

I am a child of divorce who ended up divorced myself. 

I was diagnosed with unexplained infertility and have had three natural, successful pregnancies.

I have considered myself an atheist and earned a masters in Catholic theology.

I have been a sugar addict and a health coach.

I have a degree in marriage and family and had to watch as my first marriage and family fell apart.

I have doubted my body for all my life and groaned my way through three unmedicated homebirths.

I parented my first daughter by myself, even though I was married.

I was a divorced single parent to my second daughter for three years. 

I have been incapacitated by chronic illness and worked to become virtually symptom-free.

I have pitied myself for having a daughter who cannot see and raised $16,000 to get her a service dog.

I had a breast reduction as a fifteen-year-old and breastfed all three of my daughters.

I have sobbed as my second daughter sobbed through hospital days and calmly challenged her doctors.

I have never given birth to a son and am now raising and homeschooling my bright and active stepson. 

I am joyfully married to my best friend, and blending families can sometimes be a nightmare.

I see the faces of my other children in my newborn baby and want to cry, laugh and pray all at the same time.   

I have never been happier than I am now, and my grief has never been deeper.

We are all walking contradictions and patchwork tapestries of our shortcomings, dreams, and those few things for which we refuse to accept failure.

Because my first daughter was only given two years to live, I will never take my life for granted.  Because my second daughter cannot see, I will never take my sight for granted.  Because I lived through a toxic marriage and divorce, I will never take my husband for granted.  I am still in the process of picking up the shattered pieces of myself, and, yet I feel constantly broken apart in gratitude for the wonder and beauty of my life. 

There is no going back: not as parents and not as humans.  There is only the choice to stand up and continue, even when you feel like that’s the last thing you can do.  There is learning to accept what you cannot change—to live with it, to carry it, day by day, and thereby increase your endurance.  And there is the fight to take back what you can—to take back those things that belong to you and your children by right of your humanity.

mission 

In 1597, Francis Bacon wrote, “Knowledge is power.” This precept defines the ethos and scope of our modern technological age.  We have finally defeated religion and mysticism, crowned knowledge supreme, and deified science. We have stood on the shoulders of giants and harnessed the power of the natural world to serve our needs and desires.  The age of information impartially perpetuates the illusion that we can control biology and destiny alike.  Food, medicine, shelter, and community are mediated to us via technology.  We should be happier and healthier than ever before.

And yet our brave new world is rife with stress, depression, anxiety, and identity crises.  We find ourselves and our children burdened by noncommunicable disease, allergies, and behavioral disorders. A 2005 study by the Environmental Working Group found an average of 200 chemicals in the umbilical cords of newborns, including pesticides, consumer product ingredients, and wastes from burning coal, gasoline, and garbage. Having a baby in today’s techno-paradise may feel safer than ever, but it is also more terrifying than ever.

We are, ourselves, children in the wilderness of too much and not enough.  We do what we can with the resources we have available to us. But what happens when the choices we make because we believe we’re doing the right thing result in lasting damage to our children? This is the burden that we carry as parents—the guilt of if only I had known . . .

The ugly reality is that the institutions that determine what is “safe” and what is “healthy” for the general population are influenced by corporate conflicts of interest.  We are constantly being sold the myth that pills and shots can solve our problems, then offered shrugged shoulders or more pills and more shots when these “solutions” cause new problems. Parenting today involves trudging through the increasingly swampy waters surrounding how we give birth to, feed, and educate our children. There are too many choices and opinions—too much information and “misinformation”—too many promises and false idols. 

My lived experience with my first and second daughters has caused me to deep dive into questions of medical ethics and patient advocacy in an age of technologized medicine.  Too many times, I have watched my second daughter traumatized and screaming through medical procedures while impatient nurses and doctors looked on.  I have rocked her to sleep in the white exhaustion after a day spent at the hospital, unable to sleep myself for questioning every choice I make for her.  Time and again, the hours have slipped into the still and creeping night as I tunnel down the rabbit warren of peer-reviewed studies on PubMed. 

We are all seeking answers, guidance, and mostly—the feeling of not being alone, either in our mistakes or our triumphs.  There are some answers that cannot be found and some questions that are worth asking despite their inability to be answered.  Many of the issues involving birth, health, and death are too big to fully comprehend.  The best doctors and midwives I have met admit that their professions require them to engage constantly with the mystery surrounding human existence—to come face up against the frontier of the unknown not just once, but again and again. 

The belief that the mystery of human existence is solved by a delicate cooperation between history, technology, and science is a fairytale.  Our governments and institutions claim that there is a formula for health, happiness, and longevity, and the disclaimers to this pretty propaganda are written in increasingly tiny text.  And when the official formula fails, parents are left without resources and, sometimes, treated without compassion.

Some of us have woken to find our families are being sacrificed on the frontline of a war we didn’t realize we were fighting. But the age of information is a double-bladed weapon, and the resources to educate ourselves are literally at our fingertips.  Knowledge is powerful—yes—but not just for corporate and commercial interests.  Each individual consumer has power in a capitalist economy, and groups of consumers can rally together to effect change on a large scale. 

My goal is not to pretend I have the answers.  Instead, I want to promote the scope and the gravity of the issues modern parents face.  I want to help parents equip themselves with the knowledge and information they need to make truly informed choices for their children. To foster in themselves both awareness of the freedom to refuse and viable alternatives.

To take the responsibility for their family’s health back into their own hands.  

To take back self-education and self-advocacy.

And, in the process, transform themselves from victim into agent.


credentials

  • Bachelor of Arts in Philosophy & Humanities
  • Master of Theological Studies in Marriage & Family
  • Certified Health Coach (Institute for Integrative Nutrition)
  • Bradley Natural Childbirth Educator
  • La Leche League Leader (4 years)

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